Thursday, August 30, 2012

When it Rains it Pours

Spent the day at CHOA. Got home and within the hour Katlyn's NJ tube was ripped out again.
 Called the Doctor in tears- instructed not to replace the NG tube, but rather give up the breast milk and see if she can tolerate Elecare in a bottle tonight and they will call me first thing in the morning.
 2 ounces in the bottle- puked within 30 seconds of finishing- puked 14 more times in the next 2 hours (and that was just what I counted in between a meeting at school and baseball practice- there were probably more)
Zero weight gain in the last month. I haven't slept in two weeks- I think I may end up in the Looney Bin.

Wednesday, August 29, 2012

The Nurse

Katlyn's NJ tube got ripped out--and I had to put an NG tube in until tomorrow morning.
It was a little nerve wracking, but I did it! Always wanted to be a nurse, just didn't expect to have to practice on my own kids! Bring me your sickly-- I can medicate em', bandage em' stab em', tube em', and kiss them better when I'm done!
Off to Children's at 5am for Ava's scope and Katlyn's NJ reinsertion--and back the next day for more doctor appointments. (I should just get a job there- I'm commuting too much already!)

Sunday, August 26, 2012

The Make-up Birthday

We had to have Andrew's "make-up birthday" this weekend, cause heaven forbid we don't get a full day's torture in for Birthday Cake making!

Andrew and Ethan have been obsessed with Monopoly this summer, so Andrew asked for a Monopoly cake. 

He liked it so much they had to play a game on it before it was consumed.

Happy "Make-up Birthday" Andrew!

 9 years and 1 week old! 

Sunday, August 19, 2012

The Lost Week

I keep going to do or find things today and realize that being gone almost the whole week has made me feel lost in my own home and space. So here's the update of the last week for those that didn't know. (We'll keep it to the abbreviated, no frills version!)

Katlyn had an appointment with Ava's GI first thing Tuesday morning. I know this doctor and knew she wouldn't like how tiny Katlyn was, but I figured she would start somewhere along the line of allergy testing, restricted diets, etc. Well, I underestimated her.

 She came in-- Hey how you doing? How's Ava?- while she walks behind me and cleans up as Katlyn pukes all over the floor. She talks to me for a couple of minutes, lays Katlyn down on the table--looks at her---looks back at me with her look of, "I don't like what I see"--tells her nurse to fill out some paperwork with me and says she'll be back in few minutes. Five minutes later, she comes back in and informs me that Katlyn will not be going home today.

"What do you mean?" I ask.

She says, "I can't in good conscience send her home. I've called Children's and they are getting a bed ready for her to be admitted. I know this isn't what you want to hear, but I can't give her any medication that she won't throw up, it's pointless, and I don't really even want to start doing anything until we get some weight on her."

So off we went to Children's. They placed an NJ tube that afternoon (through her nose, bypassing her stomach and ending in the jejunum of the small intestine). And then, we spent the rest of the week there while they established constant feeds and did a bunch of preliminary blood work to rule out the usual major offenders. She is currently being fed breast milk ( I have been on a top 8 elimination diet for the last 6 weeks) and if she can't tolerate that, she will likely be moved to Elecare.
She got to come home late Friday night on a feeding tube that I am told will be in for a minimum of 4-6 weeks depending on what happens from here. (if she gains weight properly, can tolerate oral feeds and meds, etc.)

She will be five months old in a little over a week and weighed 7lbs. 6 oz. upon admittance. She gain a whopping ounce and lost it and was discharged at 7 lbs. 6 oz----and that is what she still weighed today. Colonel Mustard and I are a little fearful that we have another Ava on our hands, but at this point we need to figure out how to make her grow and be healthy.

Any prayers are appreciated and please don't forget Allison. Right before we left, the GI looked at Allison and said, "I may need to see her as well, but let's take care of the emergency and then we'll have to have a talk about her." Allison is weighing in at 9 lbs. even as of a few days ago at the hospital--and while she looks like a heifer next to her sister, she is still very tiny for her age.

Katlyn chilling in her bed.

Playing toys with my sister at the hospital.

Miss Allison weathered the storm pretty well. We had to wear hats and fuzzy jammies cause the hospital was a little chilly.

"Okay, I'm over it. Can we go home now?"


Today, Andrew turned nine--and to be precise he didn't celebrate until the clock turned 10:31am and he was definitely nine years old. (I thought about telling him he was in the wrong time zone from where he was born, but I didn't want to prolong the anticipated moment anymore!)
"It's great to be 8" was definitely true for Andrew as he really enjoyed all the perks of being an 8 year old. I'm certain he will enjoy the perks of being nine as well (including the arm wrestling match Mom nearly lost this morning--and I was trying really hard, and am embarrassed to admit so!) Being my first, I'm always a little nostalgic at his birthday. I can never believe where the time goes. I really enjoy having someone who is so mature around, but I find myself very often reminded that in a short time I will be looking eye to eye with him-- and that's a little scary. What's even more scary is I know he is highly anticipating the not too distant future when he will be looking down on me, beaming with pride at his accomplishment--just as he did in the arm wrestling match today!
Last year for Andrew's birthday, I was just barely pregnant and sick as a dog. I did the best I could under the circumstances, but I felt like the kid got shafted. I promised him that next year would be better and Mom would do a good job.
Well, poor Andrew got the shaft again.I ended up unexpectedly spending the week at the hospital with Katlyn, and she was discharged at 9:00 last night. Just in time to make it home for the birthday, but no time to prepare anything special. (will share that story at a later time) Andrew so graciously agreed to settle for Chik-fil-a and an little ice cream cake until Mom could do a proper dinner and birthday cake when we get a little more settled into a new routine. Fortunately, Colonel Mustard and I had already gotten his gift, so Colonel Mustard just had to stay up until 2am putting it together. (bless him!)

Andrew opening his birthday presents.

We told him that the privilege of using the lawn mower was his birthday present and we wanted to get a picture of him looking really happy next to the lawn mower. I think he appreciated that we weren't really serious!

I was never so happy to buy a birthday present--this replaces his current bike that in the last two years, has lost almost all it's parts and threads are hanging out of the tires--well loved and well used!

His ghetto birthday cake--the promised real thing to come as soon as Mom has the time to make it happen--and I will make it up to him!

Happy Birthday Andrew! Last year of single digits. (sniff sniff) We love you so much and are so grateful that you chose to be the first born in our family!

Wednesday, August 8, 2012


Happy 4th Birthday to Ava today. It has been a wonderful year for our little princess. She has been healthy, happy, and extremely talkative! And for the first time in her life, Ava managed to get her not so little self on the growth charts! It is so nice to go to the doctors and have them comment on how fat and great she looks. She broke the 5th percentile for both weight and height this year!

Ava started Pre-K yesterday and she is loving it. As of right now--she wants to be a ballerina when she grows up (assuming of course that there is no openings for "princess" left!) Here are a few pictures of her big day.

Ava picked a Minnie Mouse cake this year. With Minnie Mouse cupcakes for school
Blowing out the candles.

Opening her presents.

Her brothers were happy to participate in the Princess Tea Party with her new tea party set!

Happy Birthday to our sweet Princess Ballerina. We couldn't be happier to have this sweet little girl in our family!

Tuesday, August 7, 2012

First Day

Yes, unfortunately it's that time of year again. I can't believe the kids are gone back to school already--and I'm at home with just the babies-- it's kind of sad and lonely. Why do they have to grow up so fast? (said every mother every new school year). I can't believe that Ava is at the elementary school for Pre-K and Andrew will be leaving Elementary school after next year.

Andrew- First day of 4th Grade.

Ethan- First day of 1st Grade.

Ava- First day of Pre-K.

Wednesday, August 1, 2012

Deep Thoughts...

What Ethan said... "I want some Ice Cream."

What I heard Ethan say... "I want some Ass Cream!"

Guess that accent needs a little work.